Past Fundraisers

On 10th June 2017 Willy and Andy took on the Mourne Way Marathon to help raise funds and awareness for FND Action and The Haemochromatosis Society.

“Our chosen charities are FND Action which provides help and support for people suffering from a functional neurological disorder, and also the Haemochromatosis Society, helping people with iron overload, both of which are very close to our hearts as our mother has a FND and my wife has Haemochromatosis.”

They challenged themselves to take part in one of Ireland’s premier off road running events and the marathon involved 26.2miles of running, including a total climb of 2063m! They did it and were able to raise a fantastic £804.84 for us. Thank you Willy and Andy!


In April 2017 Dan took a trek up Snowdon to support someone close to him and to raise funds and awareness to support the FND cause.

“Imagine suddenly finding yourself not able to speak, write or walk and having seizures leaving you temporarily paralysed then being discharged with no idea what’s happening and no treatment or care. Awareness amongst the medical profession and the public must be raised in order that sufferers may understand what’s happening to them and where to go for support and treatment and support may be improved.”

Once Dan had his JustGiving page set up he had to raise his target a couple of times because of the amazing support he was receiving. He raised a whooping £1,081.08 so we’re sure that compensates for any foot sores he had to endure along the way.  Thank you Dan!


In December 2016 Simon took on a separate Decembeard challenge, to raise funds for the FND & NEAD cause. Although he didn’t manage to grow a full beard to keep him warm in winter, he did amazingly well by exceeding his £50 target on gofundme, and raised £60!

I decided to decembeard this in order to raise funds and awareness for FND Action to enable greater support for people that have this grossly misunderstood condition

Simon is planning to do more fundraising events in 2017 and we look forward to seeing what he has planned. Thank you Simon!

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