A young carer is someone who is under the age of 18 who cares for and supports a family member who due to illness, disability, or emotional health, is unable to cope on their own.
Although caring for someone can be positive and rewarding, there are many reasons why carers need support too. For instance,
- It can be physically exhausting, especially if you are juggling family life and work life on top on top of caring.
- It can be emotionally exhausting seeing a person you care about experiencing pain and distress.
- It can lead you to suffer emotional health issues, such as stress and depression.
- It can affect relationships with partners and other family members.
- It can have a detrimental effect on your finances if you have to leave work to care full time.
- It can affect a young carer’s education and cause them to have social difficulties.
- It can become a constant battle trying to access care, both for the person you are caring for and yourself.
Carers need to be supported and know where they can access this support.
We provide a Facebook Support Group for carers and family members of those diagnosed with FND and/or NEAD.
Here are some other links that may be of help …
Carers UK is a UK-wide charity who support carers and advocate for carer’s rights. They do this by offering expert advice, connect carers together so they do not feel alone, and advocate to give carers a voice.
Carers Trust is a UK-wide charity who work to improve support, services and recognition for anyone living with the challenges of caring. They do this by networking quality assured partners to improve support, services and recognition for anyone living with the challenges of caring.
NHS Choices offers information and advice on accessing care and benefit entitlements.
Babble has been created by Carers Trust, to provide an online community for young carers in the UK. For those under the age of 18, they provide an online space to chat, share their experiences and access information and advice.
Action for Children is a UK-wide charity who provide practical and emotional support to young carers and their families.
There are many regional carer support charities across the UK and our long term aim is to collate and provide this information through our useful links page.
Carers and family members have a voice too, and can be affected by FND with positive and detrimental outcomes. If you are a carer and would like to share your story, would like to get in touch with us about providing information, or get involved in supporting other carers, please use our contact form.