Stories & Blogs
Stories and blogs are not only a means of sharing personal experiences, but can also be a way to educate/raise awareness, and share inspirational journeys.
Are you a person who has been diagnosed with FND and/or NEAD, or a carer/family member, and would like to share your story?
You can send us your story through our contact page and we will share it here. Please keep it to a maximum of 600 words and include your first name and location.
Below you will also find a list of regular bloggers to follow.
“Real stories by real people”
My FND story is a long and complicated one. It causes a whole host of symptoms as well as causing Non-Epileptic Attacks Disorder (NEAD), Chronic Fatigue (ME/CFS), and Dystonia. When I was 15, I developed intense pains in my knees whilst on a summer camp in August 2012. We did a lot of outdoor activities, so I put it down to not being used to that level of exercise and expected it to subside when I got home. Read more…
Hope, County Durham
I have multiple conditions, the main one affecting my life being Functional Neurological Disorder (FND).
When I was 11 I developed Complex Regional Pain Syndrome (CRPS) this was the beginning of a long journey that would take us four years up to now, of fighting and battles. After pushing myself into remission, a year after my initial accident I went on to develop ME/Chronic Fatigue Syndrome and was also diagnosed with Hypermobility Syndrome Read more…
The clocks have gone forward and I have been sitting in the sun, reflecting on the rollercoaster of the past 11 months. It has been a terrifying and eye opening experience and one that sadly appears to have mirrored the experiences of many others in similar situations. On the 1st of May 2016, my world started to turn itself inside out. Initially I saw the GP over concerns about continuous head pain and dizziness Read more…
Amy, North England
I study tourism in Sweden. I developed FND in my third and final year after (we believe; we may never actually know why) a chest infection, suspected pneumonia and influenza. I kept studying despite feeling awful and hardly being able to move. Fatigue started in February 2016 and never really went away. My Mum came and saw I still wasn’t getting any better. She talked to my teachers and we both decided I should fly home as there was no-one to look after me. Read more…
To anyone who’s out there, who’s able to hear my prayer
Be it Allah, God or Krishna, I really just don’t care
Grant me one day only, yes you heard it right
When me and many others, didn’t have to fight this fight
We’d arise with a spring in our step, to face the day ahead
Martina wishes to share these words written by Daniell Koepke.
The words are positive and mean something special to Martina on her journey with FND.”If I’ve learned anything from life, it’s that sometimes, the darkest times can bring us to the brightest places. I’ve learned that the most toxic people can teach us the most important lessons; that our most painful struggles can grant us the most necessary growth; and that the most heart breaking losses of friendship and love can make room for the most wonderful people. Read more…
I was a mature student in my 3rd year at University, successfully fulfilling a much cherished dream to study, when I first heard about functional neurological symptoms. Prior to this, I had suffered many years of neurological symptoms without a diagnosis. My symptoms were slowly increasing over the years, and continued to intensify at University. By the summer of my 2nd year, I was struggling significantly, so started medication. It was hoped that this would help with my pain and mobility issues, as well as ease the subsequent anxiety, which I associated with the lack of diagnosis, which was beginning to impact on my studies. Read more…
Anonymous *potential trigger
My life was built on uncertainty
Not knowing when or where my abuse would be
Would he be in when I opened the door
Waiting for a kiss hello and more?
Would it be mum who tucked me in bed
Or would it be he who uncovered me in instead?
Laura has been living with chronic illnesses, including functional symptoms, since she was young, and over time has developed positive self-learned management techniques that she shares in the hope it will help others. Follow her page at Consciously Connected.
Charlotte was diagnosed in 2013 and has set up a blog page to raise awareness of FND, and to share her personal experiences to help others. Follow her page at fndandmecom.
Rachel blogs about where her health has taken her in the last 6 years and how it affects those close to her. Follow her page at free To Fly.