Neurologists will see people with functional neurological symptoms every day in their clinics but Functional Neurological Disorder is still little known or understood. Research in to what causes it and what are the best treatments is therefore very important.
Below, you can find details of current research / projects in which you can take part. Click on the titles to find out more/take part.
You can also find links to past research papers and publications by CLICKING HERE.
Person in charge: Professor Markus Reuber, Honorary Consultant Neurologist (contact details can be found on the introduction page)
Closing Date: 10th November 2017
Aim: Do you suffer from epilepsy and/or non-epileptic attack disorder? We are currently conducting a short questionnaire to assess how different self-perceptions (self-compassion, gratitude, perfectionism) are related to how individuals with epilepsy and non-epileptic attack disorder cope with their seizures.
Epilepsy and non-epileptic attack disorder (NEAD) are chronic, disabling conditions that can cause people to become anxious, worried and low in mood. Research has shown that people living with other long-term, chronic conditions cope differently with their illness depending on the way they view themselves. These different self-perceptions can influence how well people with long-term health problems manage to live with their conditions.
This study is being carried out as part of a Doctor of Clinical Psychology (DClinPsy) research project based at the University of Sheffield.
Person in charge: Dr Rob Forsyth, Senior Lecturer in Child Neurology at Newcastle University (firstname.lastname@example.org)
Closing Date: 30th September 2017
Aim: As you may know FND can affect children and young people as well as adults. There has been even less research into FND in young people than in adults. In particular we know very little about how children and young people get on in the long term. Do they continue to experience FND in adulthood?
We have an opportunity to do a research project looking at this question but we have been asked to get the opinions of people with FND before being allowed to proceed. We are considering doing a study looking at the RVI medical records of all the young people who we have met over the last 20 years with FND, seeing whether the notes suggest they are still experiencing problems as adults, and trying to find factors (such as early recognition and help) associated with better long term outcome.
The responses to this survey will be seen by Dr Rob Forsyth, Senior Lecturer in Child Neurology at Newcastle University and members of his research team only. They will be used to decide whether to proceed with this research as planned, and a summary of the survey findings would be included in applications to NHS Research Ethics and Governance (including Confidentiality Advisory Group) authorities to assist them in deciding whether to approve the study. Responses will be deleted before April 2018.
Person in charge: Isobel Williams (PhD researcher), N125b Academic Neurology Unit, University of Sheffield (email@example.com)
Closing Date: Currently recruiting for Stage 2
Aim: We are currently conducting a research study at the Royal Hallamshire Hospital and the University of Sheffield, which examines the causes of functional neurological symptoms. This study has two stages: Stage 1 involves filling in questionnaires about your symptoms and the way you feel. You can complete stage 1 of this study via this online questionnaire. Stage 2 is a lab-based study in which participants take part in a series of simple experiments. Stage 2 of this study is carried out at the University of Sheffield.
Person in charge: Gregg Rawlings, Academic Neurology Unit, Royal Hallamshire Hospital, Sheffield (firstname.lastname@example.org)
Closing Date: Not specified
Aim: We are writing to see if you would be willing to take a few minutes to write down what it is like to live with non-epileptic seizures. In particular, we are interested in your descriptions of what you experience before, during and after your non-epileptic seizures and how your non-epileptic seizures affect your day-to-day life. Your writings will be used for educational purposes, for instance by helping others who may have just developed non-epileptic seizures to cope better. Oxford University Press may choose to publish the writings in a book as part of the Brainstorms series, which will be freely available for sale. You can have a look at other titles that have already been published in the series on Amazon or on the Oxford University Press website.
Person in charge: Shaun Walsh (email@example.com)
Closing Date: CLOSED
Aim: This study aims to explore two different areas:
1. People who experience seizures often worry about these and have fears about the effects upon their health. People will often adapt their behaviour because of these fears (e.g. not leaving the house very often, or avoiding social situations) which can affect their quality of life.
2. When people worry about things, they can often spend a lot of time thinking about them, or other bad things that have happened in the past. This may also affect people’s quality of life and can be linked to anxiety and depression.
We will explore whether the questionnaires or tests used in this study will show up any differences between people with epilepsy or people with non-epileptic seizures. Learning more about the different ways people think about their seizures will allow us to help people adapt to their seizures more effectively and maintain as high a quality of life as possible.
This study will contribute to a doctoral degree in Clinical Psychology (DClinPsy) which will be awarded by the University of Sheffield.
Person in charge: Dr Catherine Robson (firstname.lastname@example.org)
Closing Date: CLOSED
Aim: The purpose of the survey is to give people with NES an opportunity to tell their stories about their diagnosis and treatment journeys, and their experiences of living with NES. The study will contribute to increasing the profile of NES among healthcare professionals. The research also aims to identify the forms of support that are most helpful to people living with NES, to examine the social impact of having non-epileptic seizures, and to help reduce the stigma the condition carries.
Person in Charge: Neurological Alliance (email@example.com)
Closing Date: CLOSED
Aim: The survey aims to collect vital information about the experiences of people affected by neurological conditions, including the quality of the treatment, care and support that they receive. It will help us to understand how much progress has been made in improving neurological services, and which areas to focus on for improvement.