Research
researchNeurologists will see people with functional neurological symptoms every day in their clinics but Functional Neurological Disorder is still little known or understood. Research into what causes it and what are the best treatments is therefore very important. Below, you can find links to current research / projects in which you can take part.

You can also find links to recent completed research and publications below.

Current Research / Projects

In Our Words: Personal Accounts of Living with Non Epileptic Seizures (click for more information and to take part)
Person in charge: Gregg Rawlings, Academic Neurology Unit, Royal Hallamshire Hospital, Sheffield (ghrawlings1@sheffield.ac.uk)
Closing Date: Not specified

Aim: We are writing to see if you would be willing to take a few minutes to write down what it is like to live with non-epileptic seizures. In particular, we are interested in your descriptions of what you experience before, during and after your non-epileptic seizures and how your non-epileptic seizures affect your day-to-day life. Your writings will be used for educational purposes, for instance by helping others who may have just developed non-epileptic seizures to cope better. Oxford University Press may choose to publish the writings in a book as part of the Brainstorms series, which will be freely available for sale. You can have a look at other titles that have already been published in the series on Amazon or on the Oxford University Press website.


The Effects of Repetitive Thoughts and Feelings in People with Chronic Seizure Disorders’ Survey
Person in charge: Shaun Walsh (swalsh1@sheffield.ac.uk)
Closing Date: CLOSED
Aim: This study aims to explore two different areas:

1. People who experience seizures often worry about these and have fears about the effects upon their health. People will often adapt their behaviour because of these fears (e.g. not leaving the house very often, or avoiding social situations) which can affect their quality of life.

2. When people worry about things, they can often spend a lot of time thinking about them, or other bad things that have happened in the past. This may also affect people’s quality of life and can be linked to anxiety and depression.

We will explore whether the questionnaires or tests used in this study will show up any differences between people with epilepsy or people with non-epileptic seizures. Learning more about the different ways people think about their seizures will allow us to help people adapt to their seizures more effectively and maintain as high a quality of life as possible.

This study will contribute to a doctoral degree in Clinical Psychology (DClinPsy) which will be awarded by the University of Sheffield.


Listening to People with Non Epileptic Seizures
Person in charge: Dr Catherine Robson (catherinemaryrobson@gmail.com)
Closing Date: CLOSED
Aim: The purpose of the survey is to give people with NES an opportunity to tell their stories about their diagnosis and treatment journeys, and their experiences of living with NES. The study will contribute to increasing the profile of NES among healthcare professionals. The research also aims to identify the forms of support that are most helpful to people living with NES, to examine the social impact of having non-epileptic seizures, and to help reduce the stigma the condition carries.


Neurological Alliance Patient Survey 2016
Person in Charge: Neurological Alliance (arlene.wilkie@neural.org.uk)
Closing Date: CLOSED
Aim: The survey aims to collect vital information about the experiences of people affected by neurological conditions, including the quality of the treatment, care and support that they receive. It will help us to understand how much progress has been made in improving neurological services, and which areas to focus on for improvement.


Past Research / Projects / Publications

Our aim is to compile an ongoing extensive library of research papers and publications relating to functional neurological symptoms.

  • 2016 August ~ Jon Stone, MB ChB, PhD, FRCP, Ingrid Hoeritzauer, MB ChB, BSc, MRCP, Jeannette Gelauff, MD, Alex Lehn, MD, FRACP, Paula Gardiner, MSc, Dip CBT, Anne van Gils, MD, Alan Carson, MB ChB, MD, FRCP, FRCPsych Functional Disorders in Neurology Neurologic Clinics

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