Neurologists will see people with functional neurological symptoms every day in their clinics but Functional Neurological Disorder is still little known or understood. Research into what causes it and what are the best treatments is therefore very important. Below, you can find links to current research / projects in which you can take part.
You can also find links to recent completed research and publications below.
Current Research / Projects
In Our Words: Personal Accounts of Living with Non Epileptic Seizures (click for more information and to take part)
Person in charge: Gregg Rawlings, Academic Neurology Unit, Royal Hallamshire Hospital, Sheffield (firstname.lastname@example.org)
Closing Date: Not specified
Aim: We are writing to see if you would be willing to take a few minutes to write down what it is like to live with non-epileptic seizures. In particular, we are interested in your descriptions of what you experience before, during and after your non-epileptic seizures and how your non-epileptic seizures affect your day-to-day life. Your writings will be used for educational purposes, for instance by helping others who may have just developed non-epileptic seizures to cope better. Oxford University Press may choose to publish the writings in a book as part of the Brainstorms series, which will be freely available for sale. You can have a look at other titles that have already been published in the series on Amazon or on the Oxford University Press website.
‘The Effects of Repetitive Thoughts and Feelings in People with Chronic Seizure Disorders’ Survey
Person in charge: Shaun Walsh (email@example.com)
Closing Date: CLOSED
Aim: This study aims to explore two different areas:
1. People who experience seizures often worry about these and have fears about the effects upon their health. People will often adapt their behaviour because of these fears (e.g. not leaving the house very often, or avoiding social situations) which can affect their quality of life.
2. When people worry about things, they can often spend a lot of time thinking about them, or other bad things that have happened in the past. This may also affect people’s quality of life and can be linked to anxiety and depression.
We will explore whether the questionnaires or tests used in this study will show up any differences between people with epilepsy or people with non-epileptic seizures. Learning more about the different ways people think about their seizures will allow us to help people adapt to their seizures more effectively and maintain as high a quality of life as possible.
This study will contribute to a doctoral degree in Clinical Psychology (DClinPsy) which will be awarded by the University of Sheffield.
Listening to People with Non Epileptic Seizures
Person in charge: Dr Catherine Robson (firstname.lastname@example.org)
Closing Date: CLOSED
Aim: The purpose of the survey is to give people with NES an opportunity to tell their stories about their diagnosis and treatment journeys, and their experiences of living with NES. The study will contribute to increasing the profile of NES among healthcare professionals. The research also aims to identify the forms of support that are most helpful to people living with NES, to examine the social impact of having non-epileptic seizures, and to help reduce the stigma the condition carries.
Neurological Alliance Patient Survey 2016
Person in Charge: Neurological Alliance (email@example.com)
Closing Date: CLOSED
Aim: The survey aims to collect vital information about the experiences of people affected by neurological conditions, including the quality of the treatment, care and support that they receive. It will help us to understand how much progress has been made in improving neurological services, and which areas to focus on for improvement.
Past Research / Projects / Publications
Our aim is to compile an ongoing extensive library of research papers and publications relating to functional neurological symptoms.
- 2017 May ~ Christopher D Graham, Simon D Kyle A preliminary investigation of sleep quality in functional neurological disorder: Poor sleep appears common, and is associated with functional impairment Journal of the Neurological Sciences, July 15 2017, Volume 378, Pages 163-166
- 2016 December ~ Glenn Neilsen FND: Patient Priorities – Physiotherapy Results of Patient and Public Involvement study for those with symptoms affecting their movement. Uploaded 23/12/16.
- 2016 October ~ Leo A. Russell, Allan A. Abbass, Steven J. Allder, Steve Kisely, Bernd Pohlmann-Eden, Joel M. Town A pilot study of reduction in healthcare costs following the application of intensive short-term dynamic psychotherapy for psychogenic non-epileptic seizures Epilepsy & Behavior.com, Volume 63, Pages 17–19
- 2016 September 30th ~ G Nielsen, M Buszewicz, F Stevenson, R Hunter, K Holt, M Dudziec, L Ricciardi, J Marsden, E Joyce, MJ Edwards Randomised feasibility study of physiotherapy for patients with functional motor symptoms Journal of Neurology, Neurosurgery & Psychiatry, J Neurol Neurosurg Psychiatry doi:10.1136/jnnp-2016-314408
- 2016 July ~ Richard J. Brown, Marcus Reuber Towards an integrative theory of psychogenic non-epileptic seizures (PNES) Science Direct, Clinical Psychology Review, Volume 47, July 2016, Pages 55–70
- 2016 July 21st ~ Talan, Jamie It Is All In Their Head: Functional MRI identifies Neural Abnormalties in Patients with Functional Movement Disorders Neurology Today, Volume 16 – Issue 14 – pp 1,12–14
- 2015 December 29th ~ Jon Stone Functional neurological disorders : the neurological assessment as treatment Practical Neurology
- 2015 September ~ Lea Ludwig, Kimberley Whitehead, Michael Sharpe, Markus Reuber, Jon Stone Differences in illness perceptions between patients with non-epileptic seizures and functional limb weakness Journal of Psychosomatic Research, Volume 79, Issue 3, Pages 246–249
- 2015 September ~ Timothy R Nicholson, Selma Aybek, Owen O’Daly, Fernando Zelaya, Richard A Kanaan, Anthony S David Emotion-Motion Interactions in Conversion Disorder: an FMRI Study Journal of Neurology, Neurosurgery & Psychiatry, J Neurol Neurosurg Psychiatry 2015 ;86:e3 doi:10.1136/jnnp-2015-31150.43
- 2014 June ~ Mark J Edwards, Jon Stone, Anthony E Lang From Psychogenic Movement Disorder to Function Movement Disorder: It’s Time to Change the Name Research Gate