Awareness Day 2019

FND Awareness Day UK just keeps on getting better year after year!

For our 3rd year we chose the theme #WeCare4FND. In addition to raising general awareness, we wanted to focus on highlighting the amazing effort, love and dedication of people, both adults and children, who care for someone who has been diagnosed with a Functional Neurological Disorder.

We did this by running several campaigns directed at the carer’s community, some of which are highlighted in the illustrations below.

People got involved in other ways too by participating in fundraising events, handing out leaflets to raise awareness, and sharing their voice in other ways such as through media articles and radio interviews.

We want to say a huge thank you to everyone who got involved on the day, including those who bravely shared their personal experiences, and medical professionals who supported the cause. Your participation goes a long way to helping improve the care and support needed for those diagnosed.

Remember raising awareness doesn’t need to just happen on one day! 

message wall 2

Messages of love were shared on our virtual ‘Share to Care’ wall, and were posted throughout the day on social media platforms.

girl writing

People shared their stories of caring for someone with a Functional Neurological Disorder, both as adult and young carers.


Online information was available for adult and young carers, and Carers UK information booklets were sent out free of charge across the UK.


A downloadable template letter was made available, to promote awareness day and raise awareness by sending or handing out to medical staff.

belfast awareness day

An Awareness Day event was held in Belfast, hosted by FND Matters NI and supported by FND Action. The first ever FND event to take place in Northern Ireland.

dimensions meet up

FND Dimensions held several social get-togethers up and down the country to celebrate awareness day. Lots of fun was had by all and new friends were made.


FiNDlay bear made some new friends, just like Lewis, when children sent in their stories and poems about living with FND, or being a young carer.


So many people took to social media to share their experiences and knowledge of functional Neurological Disorders to raise much needed awareness.



Social media platforms were on fire on the day! For FND Action alone (stats below) there was a 400% increase in Facebook post reaches from the previous year .. over 100k! We are all truly grateful to all those who got involved with posting, and sharing posts, using the hashtag #WeCare4FND.


Don’t forget to circle the 25th March in your 2020 diary!