FND Action are delighted to be celebrating our 2nd anniversary today! On 10th October 2016 FND Action became the first charity in the UK for those diagnosed with Functional Neurological Disorders (FND), including Non Epileptic Attack Disorder (NEAD).
FND is little known yet symptoms are commonly seen in Neurology clinics each day. Sufferers are left confused, worried and without the appropriate care and support that they need.
FND Action’s aim is to continue building a bridge between those diagnosed and the medical community, provide information and support for those who have been diagnosed, promote research, and raise public awareness and understanding of the condition.
What have we been up to in the last year
Here is just a snippet of what we have been up to.
- Our patient support groups on Facebook have grown considerably in size, and we hope that people take comfort in knowing that they are not alone. To find out more about our online groups CLICK HERE.
- Our website page views reached in excess of 100,000!
- Our social media sites have reached just under 500,000 people. To follow us on Facebook CLICK HERE. We’re on Twitter too CLICK HERE and AND HERE.
- The 25th March is FND Awareness Day UK. This year we teamed up with other FND charities and groups across the UK for our #Voices4FND campaign. CLICK HERE to find out more.
- We have established a drop-in centre in Glasgow.
- We have become members of various neurological bodies, such as the Neurological Alliance.
- We were invited to be stakeholders with the National Institute for Health and Care Excellence (NICE) and contributed to their new guidelines for Suspected Neurological Conditions.
- We helped facilitate a patient workshop with NHS England (London Region).
- We have distributed in excess of 4,000 leaflets, 600 wristbands and 1,000 medical alert cards; to individuals, businesses and to the medical community. CLICK HERE for details on how these can be obtained.
- We have supported researchers to find participants for a number of excellent UK-based research projects. For more information CLICK HERE.
- We were delighted to be asked to write the Foreword for the ‘In our Words’ book which was published this year, and to which many of our members contributed. CLICK HERE to find out more details about the book.
- We have attended a number of events to represent the FND community.
- Our amazing fundraisers have run, walked, climbed, swam, danced, and held a variety of events to raise funds and awareness.
What do we have planned for the coming year
We’re only a small charity at the moment, run by a handful of unpaid volunteers, but we have BIG ideas! For example:-
- We are working on getting charity status in Scotland.
- We are planning to establish further drop-in centres across the UK.
- We will continue to develop our website to provide up to date information and support resources.
- We will continue to work with leading specialists and medical staff to improve care for those diagnosed, raise awareness, and assist where possible with future research.
- We’ve taken on board the desperate need for support and care for those under the age of 18, and will soon be launching FND Youth Action.
- We are aware of the severe lack of neurological services for, and understanding of, FND in Wales and Northern Ireland. We are working on this and hope to have some positive news soon.
- We will be launching our online shop stocked with awareness goodies.
Want to join us?
Our continued success and growth depends on you, our generous fundraisers and amazing volunteers, who give up their time to help the FND cause.
If you would like to join us please get in touch with us at firstname.lastname@example.org
Finally … Thank you!
We would like to extend our sincere thanks to each and every one of you who has helped us in any way this past year. We couldn’t have done it without you!
We look forward to what we can achieve together between now and our 3rd birthday!