I am a carer for my husband.
He was officially diagnosed in Feb this year after 4 years. We are lucky that he can continue to work with a good support system. I have had to change my job in order to make sure I am home more and I am always nervous about leaving him. The biggest worry is the seizures which he can have up to 10 a day lasting hours at a time. He can also get lost in the town we live in so usually gets a taxi to work or goes out with me.
I hope one day treatment is more readily available for people with fnd.
By Jessica, Northampton