FND Awareness Day UK – 25th March 2020 | Jessica’s Story

I am a carer for my husband.

He was officially diagnosed in Feb this year after 4 years. We are lucky that he can continue to work with a good support system. I have had to change my job in order to make sure I am home more and I am always nervous about leaving him. The biggest worry is the seizures which he can have up to 10 a day lasting hours at a time. He can also get lost in the town we live in so usually gets a taxi to work or goes out with me.

I hope one day treatment is more readily available for people with fnd.

By Jessica, Northampton