Debbie’s Story


My husband was diagnoses 3 weeks ago. He has gone from decorating, driving and caring for our young son to not being able to leave the house. 

He has up to 8 what I can only think are seizures a day, he has developed a tick and stammer. We have had no in put on how the neurologist who has only seen him once in A and E has come to this diagnosis and we are struggling. I have had to quit work and have no idea how we will manage financially. I am chasing doctors and neurologists to try and get answers and feel like I am getting no where. 

I don’t think my story will help anyone right now, but I am hoping for a little sunshine soon.

By Debbie, Shropshire