Zoe’s Story


I am 31 years old and in May 2020 I had my first seizure and my second in July. I’ve been having multiple seizures everyday since. I have 3 beautiful children and a supportive husband. I worked full time, was enjoying life and this came out of nowhere. I also have a variety of other fnd symptoms such as being unable to walk, tics, speech problems and more. Our lives have completely changed. 

I aim to spread awareness of this little understood condition for the general public and health professionals too. I don’t want anyone to feel alone or embarrassed like I did when I was diagnosed. 

Together we are stronger.

You are not alone.

By Zoe, Eastbourne