Proposed study of long term outcomes after Functional Neurological Disorder (FND) in children

Dr Rob Forsyth and researchers at the children’s neurology department at the Royal Victoria Infirmary (RVI) in Newcastle (before 2012, based at Newcastle General Hospital in Newcastle) are studying the long-term outcomes of former patients seen as children or young people with Functional Neurological Disorder (FND) between 1997 and 2017.

This study involves looking at Newcastle hospital notes to see whether any of these former patients (now adults) are experiencing ongoing problems with functional neurological symptoms or whether things have settled down and they are well. Trying to understand what helps a child with FND achieve long-term freedom from FND symptoms will be an important part of improving care for children with FND, a very neglected problem.

To support Dr Rob Forsyth and his team, we would kindly ask if you could please read the following questions and follow the link below if all are applicable.

Do you live in the Northeast or Cumbria?

Are you a young adult with FND?

Do you think you had FND as a child?

Do you think you were seen by children’s doctors at the RVI in Newcastle at any time since 1997 for FND?

If you have answered yes to all these questions then please click here  for further information that may be important to you.

If you have any questions about the study, please contact Dr Rob Forsyth at

Thank you in advance for your participation.