I was aged 11 when my life was turned upside down and now, at 16 years old I feel finally at the point of more understanding and wish it could have been simpler in the beginning. My health has dominated much of my life for the past 5 years, it seems impossible to me that it’s been such a long time and that I was so young when it all began. ~ ‘The Missing Piece’ by Hope Simpson Read more…
My FND story is a long and complicated one. It causes a whole host of symptoms as well as causing Non-Epileptic Attacks Disorder (NEAD), Chronic Fatigue (ME/CFS), and Dystonia. When I was 15, I developed intense pains in my knees whilst on a summer camp in August 2012. We did a lot of outdoor activities, so I put it down to not being used to that level of exercise and expected it to subside when I got home. ~ Jemima, Yorkshire Read more…
“Have you ever had a moment when you’ve felt truly alive? Have you ever stopped to question what’s happening in your mind, your body and your surroundings? Have you come to rest and allowed whatever’s there just to be? Some people happily choose to live on auto-pilot. Others sail through life on auto-pilot perhaps without even realising. For some, that sailing can come to an abrupt halt. They need a deeper level of conscious awareness in order to function in a way that allows them to live well.” Follow Laura’s blog at Consciously Connected.
I have multiple conditions, the main one affecting my life being Functional Neurological Disorder (FND). When I was 11 I developed Complex Regional Pain Syndrome (CRPS) this was the beginning of a long journey that would take us four years up to now, of fighting and battles. After pushing myself into remission, a year after my initial accident I went on to develop ME/Chronic Fatigue Syndrome and was also diagnosed with Hypermobility Syndrome ~ Hope, County Durham Read more…
“I was diagnosed with Functional Neurological Disorder (FND) in August 2013. I have started this blog to try and raise awareness about my illness. I’m not a doctor and I am not medically trained but I have been living with this interesting illness for the past 2 years.” Follow Charlotte’s blog at fndandmecom.
The clocks have gone forward and I have been sitting in the sun, reflecting on the rollercoaster of the past 11 months. It has been a terrifying and eye opening experience and one that sadly appears to have mirrored the experiences of many others in similar situations. On the 1st of May 2016, my world started to turn itself inside out. Initially I saw the GP over concerns about continuous head pain and dizziness ~ Georgina, Bedfordshire Read more…
“This is my safe place, any beach I don’t mind. but just of late this picture has had some alternative meanings and darker times. This is a blog about me my mental health and the journey it has taken me on in the last 6yrs. It reflects on my emotions and the physical way my mental health affects me and others around me.” Follow Rachel’s blog at free To Fly.
I study tourism in Sweden. I developed FND in my third and final year after (we believe; we may never actually know why) a chest infection, suspected pneumonia and influenza. I kept studying despite feeling awful and hardly being able to move. Fatigue started in February 2016 and never really went away. My Mum came and saw I still wasn’t getting any better. She talked to my teachers and we both decided I should fly home as there was no-one to look after me. ~ Amy, North England Read more…
I was a mature student in my 3rd year at University, successfully fulfilling a much cherished dream to study, when I first heard about functional neurological symptoms. Prior to this, I had suffered many years of neurological symptoms without a diagnosis. My symptoms were slowly increasing over the years, and continued to intensify at University. By the summer of my 2nd year, I was struggling significantly, so started medication. It was hoped that this would help with my pain and mobility issues, as well as ease the subsequent anxiety, which I associated with the lack of diagnosis, which was beginning to impact on my studies. ~ Jules Read more…
“We both are sufferers of Functional Neurological Disorder and have came together to write about our journey fighting FND and trying to maintain our health as well as work towards our goals and your dreams and also juggling having a normal life whilst fighting against our illness.” Follow Paisley & Becca’s blog at Our FND Journey.
I never thought I would openly speak or even post about this, but I get questions from people on a weekly basis if I make a rare appearance outside my home. Most people are shocked to see the deconditioning of my mobility, being unable to walk unaided 95% of the time at the age of 23, and make a variety of assumptions that are incorrect! ~ Thomas Read more…
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