VOICES IN STORIES
Writing about your experience and sharing it with others is just one of many ways you can help raise awareness, as it allows others to have an insight as to what it may feel like to be walking in your shoes.
Whether you are a person who has the diagnosis, a carer, a family member, a friend or just someone with interest … your story matters.
You could write it as a snippet of life in the form of a blog post, or as a story, and you may even want to consider sharing it in a newspaper or magazine.
To submit your story please complete the form below. Stories will be shared across social media sites throughout the day, and displayed below.
Hello, my name is Catherine. My journey with non-epileptic seizures started when I was about 14/15. I’m now 28. The amount of seizures I was taking gradually built up over time to everyday, throughout the
Hi I’m Charley, I’m 12. I was diagnosed with FND in November 2019. My FND causes me to have many seizures, episodes of paralysis, pain, memory loss and effects my hearing and vision. FND has
I was diagnosed in 2017 after months of tests and hospital stays after developing paralysis in my right leg and I began to have seizures. After what felt like forever I was diagnosed with FND.
I was first diagnosed with FND in May 2019, after being taken into hospital thinking I had had a stroke. I am a husband and father to 2 beautiful girls, and last May I feel
I am a 63 year old male living in Canada and have been diagnosed with FND. This condition can affect anyone. My main symptoms are weakness that makes me go down to the ground paralyzed
I was diagnosed aged 21 after 6 years of pain, tunnel vision, and memory loss. Aged 20 is when the paralysis of my left arm started. Now I’m slowly getting there, practising pacing techniques, researching
I am 19 years old, I developed FND when I was 17 after a head injury. It took around 8 months to get diagnosed and I was in hospital for 5 months due to uncontrollable
Hi, I’m Brighton from Portsmouth. I have had non-epileptic seizures since I was 11 but was only diagnosed eight years later after being laughed at by my doctor. I’m 20 now and doing everything I
Hi I’m Emma I was diagnosed with FND in July 2019. I suffer with chronic pain, numbness, tremors and muscle spasms down the right handside of my body this has left me with mobility issues
My name is Lauren. 2 years ago I was a full time dance student, part time dance teacher and travelling for dance competitions and performances. One day woke up having a seizure and since then
I first started having random drop attacks in January 2015. I would feel myself falling and lay on the floor unable to open my eyes, communicate, or move voluntarily. I was in college and going
I am a carer for my husband. He was officially diagnosed in Feb this year after 4 years. We are lucky that he can continue to work with a good support system. I have had
My story begins in 2018, where I blacked out at a fireworks display! We had no idea why I did, and after that I had constant headaches and feeling dizzy. It wasn’t until January 2019,
Hi, my names Chantelle. I was diagnosed with FND in 2015. It first started when I came off my moped and became unconscious. The NHS rushed me into CT scan where they found lesions on
My name is Karrie-Ann Seymour, I’m 19 years old and I was diagnosed when I was 17. My FND causes me to experience episodes of paralysis, seizures and pain, especially in my legs. It has
I first got symptoms at age 11 and wasn’t diagnosed with N.E.A.D until I was 25. I suffered badly with seizures everyday, had a multitude of injuries and had to be off work for almost
My son Luke first started with symptoms in March ‘17 It began with pains in his legs and a phone call for a lift from the bus stop. He couldn’t make the 5-minute walk. The
I developed disabling symptoms of FND after being knocked over by a car. I had many symptoms including difficulty walking, speech problems, noise sensitivity and problems concentrating. Prior to the accident, I was independent, worked
So long story short last year I was in hospital for 14 days after hitting my head which then resulted in two seizures. So then after 14 days and 400 seizures I got the diagnosis
Just over 2 yrs ago, I got up on a Monday morning to go to work but found myself shuffling as opposed to walking. I carried on my day and found that on the Tuesday
My physical health has dramatically deteriorated over the last 14 months which is now affecting my mental health. I have been having seizures for approximately 6 months now. I am awaiting an appointment with neurology
Hi I’m a carer for my friend of 20 years she fnd which was finally diagnosed about a year ago, I have been actually helping my friend for 4 years with everyday living and helping
