Emma’s Story | FND Awareness Day UK 2026

A personal story of living with Functional Neurological Disorder (FND).
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FND completely flipped my life upside down.

I’m 2 years now since being diagnosed and so much has changed. Not only the obvious : functional tics, tremors, non epileptic seizures, gait disorder (and many other bells and whistles!), but also the understanding around FND has changed too : realising how external factors like grief and stress can flare up my symptoms, learning how to pace and take minute by minute, day by day (and many other tips and tricks to try or discover still).

I really hope FND gets more understood by those around us and it shouldn’t have to be so exhausting advocating for ourselves or waiting for awareness days to speak out.

Our voice should be heard every day so I hope that changes over time.

~ By Emma, Age 28