FND Awareness Day UK

The 25th March marks FND Awareness Day in the UK, and we are now in the 8th year of facilitating activities to raise much needed awareness of Functional Neurological Disorder.

Functional Neurological Disorder is a brain network disorder, and can affect anyone of any age. The neurological symptoms for many are severe and disabling, and life changing for all. Access to specialist care, or lack of appropriate care, continues to be a serious issue in most parts of the UK. Awareness day allows us as a community to come together and be the #Voices4FND to influence change.

Prevalence is currently unknown due to the lack of regional reporting, however Neurologists will see cases in their clinics frequently. Sadly though, receiving the diagnosis proceeds no further for many as there is still little knowledge or awareness of FND. This leads to many being left struggling on their own, desperately trying to find any care and support which may help them. FND Action advocate for accessible specialist collaborative care for ALL those who have been diagnosed, to ensure they are given the best opportunity to a quality of life that is maintainable.

We welcome you to join us on the 25th March to help raise much needed awareness of FND.

Here are some ways you can get involved in FND Awareness Day:

Join FND Awareness Day UK online Event

Each year on awareness day we collaborate with FND Dimensions and FND FrieNDs to host an online event. This year our topic is #Thenandnow and we have 3 great speakers!

Other Activities:

Share your story

Writing about your experience and sharing it with others is just one of many ways you can help raise awareness. It allows others to have an insight into what it may feel like to be walking in your shoes.

You can still share your story with us anytime HERE.

Click on the link below to read stories shared on the day.

#InformTheDoctor

In October 2022, FND Action launched a campaign to provide an information sheet of current information relating to FND, for people diagnosed to inform their doctors.

There is still a great need for medical professionals to be informed, and to dispel inaccurate information that can lead to people being without appropriate care, or worse still no care at all.

There are 3 options. Download the sheet and hand it to your doctor at an appointment, send it to your doctor via email or mail, or we will send it to a specific doctor, clinic, department, etc on your behalf (no personal information will be shared).

Click on the link below for further information.

FiNDlay’s FND Challenge

FiNDlay bear would like to see your creative ideas of how to write FND, and share them across our social media sites to raise awareness. Whether it’s a home, or out in public .. What is FND? You can send them to us on the form below, and your name/nickname will be added to your photo. If you add your address you may receive a visit from FiNDlay to thank you in person.

SUBMISSIONS ARE NOW CLOSED

Quick survey for those diagnosed with FND

If you have been diagnosed with Functional Neurological Disorder, or specifically functional seizures, FMD, functional dystonia, etc, we invite you to answer the couple of questions below. Results will be published on awareness day.

SUBMISSIONS ARE NOW CLOSED

FND Action leaflets

Leaflets can still be obtained through our FND TOOLKIT.

* New campaign starting *

Watch this space!

Other ways to get involved:

Show your support by sharing this image on your social media accounts for FND Awareness Day UK. All you need to do is click on the link below to view/download/save to your device photo album.

Download image

If you are doing an awareness or fundraising event, let us know about it so we can share across our social media sites. Contact us with the details or link to your event details.

Look out for the hashtags below to share awareness day information across your social media sites. Don't forget to add the hashtag/s to any of your posts so we can share them too!

#Voices4FND #Thenandnow

Show your support by changing your profile picture in support of FND Awareness Day UK. All you need to do is click on the link below to download/save to your device photo album.

Download profile image