Who we are
In October 2016, FND Action became the first charity to be registered in the UK to support those diagnosed with a Functional Neurological Disorder (FND), including Non Epileptic Attack Disorder (NEAD)/Functional Seizure Disorder.
The charity was founded by a group of people who had been diagnosed themselves, and who wanted to come together to provide help and support to others.
‘We know what it is like to be diagnosed with a condition that you have never heard of, and which many medical staff either don’t know about or have an outdated understanding. Our goal with this website is to provide up to date information on all aspects of living with FND.’
FND Action is run solely by volunteers who dedicate their time to supporting people diagnosed. In addition we work with medical professionals, charities and organisations alike, to raise much-needed awareness to help improve the treatment and care available within the NHS.
To shine a light on Functional Neurological Disorders so that people diagnosed feel heard, supported and empowered.
Awareness: We aim to do everything we can to raise awareness of functional neurological symptoms among the general public, healthcare professionals, and service providers/other charities. We already have a strong social media presence and will be working to develop this. We have lots of ideas and will be continuously updating with developments.
Peer support: We aim to develop our website as a key resource for information, support and signposting through regular updates. We will also continue to provide online support groups for those diagnosed with functional neurological symptoms, their families and their carers. We recognise that having the chance to chat to other people diagnosed will eliminate isolation, and can have a positive impact on a condition that is still little known about.
Empowerment: We aim to encourage and help people to achieve a better quality of life and improved wellbeing. We believe that whilst there is no magic cure, there is a lot that can be done to help towards recovery and/or management of symptoms.
Collaborations: We aim to continue to build on relationships with specialist health professionals, related charities and service providers. We understand that effective treatment of FND needs to have a holistic approach. We will also be encouraging participation in ongoing research as we believe this is crucial for developing a better understanding of FND, and will help towards specialist care being accessible for all.