Who we are

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

What we do

We provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.

Why we do it

FND is reported as the second most common reason for an initial Neurology appointment, after headache. Yet there is still little-known about the condition within the health sector, which leads to people struggling to access any appropriate treatment. No-one should ever feel isolated and uncared for.

Our Mission

We aim to develop our website as a key resource for those diagnosed, caregivers and the public. Our online support groups provide a safe place to be among people who understand. We are committed to continue our strive to advocate for the cause, so that health and support services are available for all.

WHAT IS FND?

Functional Neurological Disorder is a diagnosis given when there is a problem with how the brain/nervous system is 'functioning'. Whilst the basic wiring is intact, there is a problem with how the signals/messages are being sent and received to allow the body to function in the normal way.

YOU MATTER

Getting diagnosed can be both a blessing and seemingly a curse. You may have had years of tests, different doctors and medications, so it can be a relief to finally know what is wrong. However, you may feel a bit lost and frustrated, and need to come to terms with your condition.

YOU'RE NOT ALONE

With a diagnosis that is still little-known, you can feel like you have nobody to talk to about it. You are not alone. Online support groups provide a safe place, where you can be among people who care and that are going through similar experiences.

FUNDRAISE

Fundraising is not only fun, but it's a great way to get involved with supporting a cause that it close to you. Activities could range anywhere from arranging a coffee morning to climbing Ben Nevis. All donations received go towards helping us to support people diagnosed.

FND Awareness Day UK 25th March 2021 | Hannah’s Story

March 26, 2021

Hannah’s Story #Voices4FND In 2009 I burnt out and was diagnosed with a Functional Neurological Disorder. I would twitch and jerk in response to sound or touch. I looked like a peculiar air drummer, with no rhythm. These disorders, which

FND Awareness Day UK 25th March 2021 | Lauren’s Story

March 26, 2021

Lauren’s Story #Voices4FND I have had FND for 12 years, but was misdiagnosed for 8 of those years. I had my first official FND spell at the age of 10, and I am now 22. My spells present themselves as

Functional Neurological Disorder/FND Action

10 May 2021

This week is #MentalHealthAwarenessWeek Your emotional health is just as important as your physical health. Here are some pages that may help towards looking after...

Functional Neurological Disorder/FND Action

07 May 2021

How amazing is 4yr old Essa, to have been able to contact emergency services to help his mum who had had a seizure. https://www.bbc.co.uk/news/uk-england-nottinghamshire-56995084

www.bbc.co.uk

Toy car prompts Nottingham boy, four, to dial 999 for collapsed mum

FND Action 1 day ago

RT @emma_j_lyons: I am EXCITED for you all to see this week's 15 minute #stewartssoundbites I speak to the brilliant @jonstoneneuro about F…

FND Action 1 day ago

This week is #MentalHealthAwarenessWeek . Your emotional health is just as important as your physical health. Here are some pages that may help towards looking after your whole self #FND https://t.co/aptVinAX3P

FND Action 2 days ago

RT @p_insch: 1/3 Delighted @fionaneuropsych and I have had our abstract detailing the outcomes of our feasibility study evaluating the brie…

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c/o Medway Voluntary Action
5a New Road Avenue, Chatham
Kent ME4 6BB
Email: contact@fndaction.org.uk

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