Supporting people affected by Functional Neurological Disorder
Information, support, community and advocacy shaped by lived experience.
FND Action is a patient-led UK charity supporting people living with Functional Neurological Disorder (FND), their families and those who care for them.
Built from lived experience
FND Action was created from first-hand experience of what it can be like to receive an FND diagnosis and then try to work out what happens next.
That lived experience remains at the heart of what we do. We work with people affected by FND, clinicians, researchers and others to improve information, understanding, support and care.
About FND ActionWhat we do
Our work is focused on helping people understand FND, find support, have a voice and access information that can help them navigate life beyond diagnosis.
Information & guidance
Clear information about FND, diagnosis, treatment, healthcare and navigating the practical challenges that can come with the condition.
Community & support
Online communities and regional groups that help people affected by FND connect with others, share experiences and build friendships.
Patient voice & advocacy
Helping people affected by FND be heard and encouraging their experiences to help shape services, healthcare, research and policy.
Research & education
Sharing research opportunities, supporting better understanding of FND and working with professionals and organisations to improve care.
Find support
Support can mean different things at different stages. You may be looking for information after diagnosis, people who understand, practical help or services in your area.
Your voice matters
FND Action is shaped by people affected by FND. We want people to be able to share experiences, contribute ideas and help influence the information, services and projects we develop.
There are different ways to be involved, whether that is sharing your story, taking part in research, helping us develop a new resource or volunteering.
Latest from FND Action
Community stories, research opportunities, news and updates from our work.
Support our work
Your support helps us continue providing information, community and advocacy, while developing new resources and services for people affected by FND.
WHAT IS FND?
Functional Neurological Disorder is a diagnosis where there is a problem with how the brain/nervous system is 'functioning'. Whilst basic wiring is intact, there is a problem with how information is being sent and received to allow the body to function normally.
FND - BEYOND DIAGNOSIS
Receiving an FND diagnosis can leave you with more questions than answers. You might feel uncertain, alone, or unsure where to turn next. Clear, supportive information can help you understand what the diagnosis means and what steps you can take now.
YOU'RE NOT ALONE
With a diagnosis that is still little-known you can feel like you have nobody to talk to about it. You're not alone. Online support groups provide a safe place for you to be among people who care and going through similar experiences, and we are always here for you.
FUNDRAISE
Fundraising is great fun and a way to get involved with supporting a cause that it close to you. Activities could range anywhere from arranging a coffee morning to climbing Ben Nevis. All donations received go towards helping us to support people diagnosed.
Latest news, stories and updates from FND Action
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Registered Charity (1169554)
5a New Road Avenue
Chatham, Kent
ME4 6BB
Email: contact@fndaction.org.uk