Our website is currently being updated page by page,
so please bear with us through this transition.

Who we are

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

What we do

We provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.

Why we do it

Functional neurological symptoms are commonly seen in Neurology and epilepsy clinics, yet there is still little-known about the condition within the health sector or understanding is outdated. This leads to people struggling to access any treatment. No-one should ever feel isolated and uncared for.

Our Mission

We aim to develop our website as a key resource for those diagnosed, caregivers and the public. Our online support groups provide a safe place to be among people who understand. We are committed to continue our strive to advocate for the cause, so that health and support services are available for all.

WHAT IS FND?

Functional Neurological Disorder is a diagnosis given when there is a problem with how the brain/nervous system is 'functioning'. Whilst the basic wiring is intact, there is a problem with how the signals/messages are being sent and received to allow the body to function in the normal way.

YOU MATTER

Getting diagnosed can be both a blessing and seemingly a curse. You may have had years of tests, different doctors and medications, so it can be a relief to finally know what is wrong. However, you may feel a bit lost and frustrated, and need to come to terms with your condition.

YOU'RE NOT ALONE

With a diagnosis that is still little-known, you can feel like you have nobody to talk to about it. You are not alone. Online support groups provide a safe place, where you can be among people who care and that are going through similar experiences.

FUNDRAISE

Fundraising is not only fun, but it's a great way to get involved with supporting a cause that it close to you. Activities could range anywhere from arranging a coffee morning to climbing Ben Nevis. All donations received go towards helping us to support people diagnosed.

Thursday 5th August marks the return of FND Action Drop-ins

July 29, 2021

Participants needed | Experiences of Managing Functional Seizures (Non Epileptic Attack Disorder)

July 14, 2021

News Join us Donate Contact “I would like to invite you to take part in my MSc dissertation research. My name is Emily Norman and I am a Postgraduate student at Manchester Metropolitan University, studying Health Psychology.

Functional Neurological Disorder/FND Action

Functional Neurological Disorder/FND ActionJuly 29, 2021 at 10:53am

Join us for our welcome back FND get togethers next Thursday in Kent. If you would like any further details please get in touch with us at contact@fndaction.org.uk

4 6 View on Facebook

Functional Neurological Disorder/FND ActionJuly 27, 2021 at 9:50am

FND in the news ..

You may have seen a video go viral recently on Instagram relating to a lady who was diagnosed with FND following the vaccine. This has understandably caused a lot of concern and questions, and FND specialists have responded in this news article.

EXPERTS have sought to reassure people that are hesitant to get the Covid vaccine in fear of a mystery illness. It comes after a video went viral on Instagram of a 34-year-old British woman struggl…

2 View on Facebook

Functional Neurological Disorder/FND ActionJuly 14, 2021 at 3:27pm

*RESEARCH OPPORTUNITY*

Participants needed for study into experiences of managing functional seizures (Non Epileptic Attack Disorder/NEAD)

Participants wanted for research into managing functional seizures. Non Epileptic Attack Disorder. NEAD. Functional Neurological Disorder

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Functional Neurological Disorder/FND ActionJuly 14, 2021 at 9:19am

Huge thanks to Zoe, husband Paul, and friend Jamie for arranging this fundraising event.

Furthermore, thank you to all the amazing donors who are helping us continue our work in raising awareness and supporting those diagnosed.

Horam Park Golf Club's golfing day raises an amazing £2,500 for the FND cause.

41 View on Facebook

FND Action @FNDAction

July 29, 2021 at 8:06am
Join us for our welcome back #FND get togethers next Thursday in Kent. If you would like any further details please get in touch with us at contact @fndaction.org.uk https://t.co/wcTiktZHZw

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FND Action Retweeted · Kirsty-ann Johnstone @KirstyJ80

July 29, 2021 at 8:02am
Just one of my distraction techniques of living with #FND Doing what works for me = success @FNDHopeUK @FNDAction https://t.co/tHnjP5m8kJ

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FND Action Retweeted · EmilieOST @emilie_ost

July 27, 2021 at 5:29am
If you're curious to learn more about Speech and Language Therapy and Functional Neurological Disorder, don't miss @Lorna_SLT and @cazbarnett1 talk online on July 28th at 5.30pm🤩
https://t.co/65daHPCKj6
#SLT #FND #SLpeeps #SLT2b
@APinchofSaLTs @RCSLTLearn @GivingVoiceUK

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FND Action Retweeted · Richard Brown @DrRichJBrown

July 27, 2021 at 5:28am
Really impressive, practical guidance for assessment and management of functional neurological disorders.
This is for speech/swallowing/cough etc aspects, and adult emphasis. We need more work like this in child health. https://t.co/GgVVK9c9bk

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FND Action Retweeted · Jon Stone @jonstoneneuro

July 27, 2021 at 5:27am
Good article @TheSun @VanessaChalmers exploring why we expected rare reports of FND after Covid vaccine. 1) a trigger not a cause; 2) FND often triggered by minor injury/physical illness/random bad luck; https://t.co/FdR5411chG

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FND Action Retweeted · Matthew Newsham @MatthewFND

July 27, 2021 at 5:23am
This weeks #blog were are talking about the one thing everyone avoids #mentalhealth have a read, and leave a comment below! #FND
@FNDAction @FNDHopeUK
https://t.co/6SplNYxrdN

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Stay in Touch

Coming soon!

c/o Medway Voluntary Action
5a New Road Avenue, Chatham
Kent ME4 6BB
Email: contact@fndaction.org.uk