Our website is currently being updated page by page,
so please bear with us through this transition.

Who we are

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

What we do

We provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.

Why we do it

Functional neurological symptoms are commonly seen in Neurology and epilepsy clinics, yet there is still little-known about the condition within the health sector or understanding is outdated. This leads to people struggling to access any treatment. No-one should ever feel isolated and uncared for.

Our Mission

We aim to develop our website as a key resource for those diagnosed, caregivers and the public. Our online support groups provide a safe place to be among people who understand. We are committed to continue our strive to advocate for the cause, so that health and support services are available for all.

WHAT IS FND?

Functional Neurological Disorder is a diagnosis given when there is a problem with how the brain/nervous system is 'functioning'. Whilst the basic wiring is intact, there is a problem with how the signals/messages are being sent and received to allow the body to function in the normal way.

YOU MATTER

Getting diagnosed can be both a blessing and seemingly a curse. You may have had years of tests, different doctors and medications, so it can be a relief to finally know what is wrong. However, you may feel a bit lost and frustrated, and need to come to terms with your condition.

YOU'RE NOT ALONE

With a diagnosis that is still little-known, you can feel like you have nobody to talk to about it. You are not alone. Online support groups provide a safe place, where you can be among people who care and that are going through similar experiences.

FUNDRAISE

Fundraising is not only fun, but it's a great way to get involved with supporting a cause that it close to you. Activities could range anywhere from arranging a coffee morning to climbing Ben Nevis. All donations received go towards helping us to support people diagnosed.

Participants needed | Experiences of Managing Functional Seizures (Non Epileptic Attack Disorder)

July 14, 2021

News Join us Donate Contact “I would like to invite you to take part in my MSc dissertation research. My name is Emily Norman and I am a Postgraduate student at Manchester Metropolitan University, studying Health Psychology.

Horam Park Golf Club’s golfing day raises an amazing £2,500 for the FND cause

July 14, 2021

News Join us Donate Contact On Friday 2nd July, Horam Park Golf Club hosted a golf day to raise awareness of Functional Neurological Disorder (FND), and raise funds for FND Action to support their plight in helping those

Functional Neurological Disorder/FND Action

Functional Neurological Disorder/FND ActionJuly 14, 2021 at 3:27pm

*RESEARCH OPPORTUNITY*

Participants needed for study into experiences of managing functional seizures (Non Epileptic Attack Disorder/NEAD)

Participants wanted for research into managing functional seizures. Non Epileptic Attack Disorder. NEAD. Functional Neurological Disorder

2 View on Facebook

Functional Neurological Disorder/FND ActionJuly 14, 2021 at 9:19am

Huge thanks to Zoe, husband Paul, and friend Jamie for arranging this fundraising event.

Furthermore, thank you to all the amazing donors who are helping us continue our work in raising awareness and supporting those diagnosed.

Horam Park Golf Club's golfing day raises an amazing £2,500 for the FND cause.

41 View on Facebook

Functional Neurological Disorder/FND ActionJuly 14, 2021 at 7:56am

Heather's story..

EVERY DAY THIS BEAUTIFUL WOMAN STRUGGLES TO GET OUT OF BED.SHE STRUGGLES TO GET DRESSED.SHE STRUGGLES TO WALK.SHE STRUGGLES TO TALK.BUT, THAT WASN’T GOING TO STOP HER TELLING ME HER STORY… I know it’s Heather’s house before I even check the numbers on the doors. It’s bright yellow, and lik...

18 View on Facebook

Functional Neurological Disorder/FND ActionJuly 13, 2021 at 7:49am

FND in the news..

Lillian's journey of resilience and determination

Lillian Cuthbertson was unable to walk or even brush her teeth after being diagnosed with FND, remarkably she is now back on the ice.

39 View on Facebook

FND Action Retweeted · Dr Pauline Insch @p_insch

July 14, 2021 at 12:40pm
Just a reminder for those aged 16+ with a diagnosis of FND in NHS Grampian @NhsgNeuropsych have a 2 session group that aims to help you understand #FND, find strategies and meet others also living with #FND. See below for more info 👇🏻 @NHSGrampian https://t.co/0zUCzdeE6m

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FND Action @FNDAction

July 14, 2021 at 12:31pm
https://t.co/alFTHvidg7 #FND #NEAD Functional Neurological Disorder

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FND Action @FNDAction

July 14, 2021 at 6:22am
https://t.co/AxaYwl64oH #FND

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FND Action Retweeted · FND Portal @FndPortal

July 14, 2021 at 5:04am
Ay #medtwitter! If you’re a general practice doctor, you almost certainly see people w Functional Neurological Disorder.

Want a good intro to current understanding of diagnosis, mechanism, + treatment?

Help your patients out + have a look! 👀

https://t.co/vpdZV01p4z

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FND Action Retweeted · Laura H @LHarrri

July 14, 2021 at 5:02am
Watched this amazing short documentary today about functional seizures and the battle to have Functional Neurological Disorder understood. Very moving contributions from those that had to suffer to get diagnosed and learn to live with FND. Go watch #FND
https://t.co/nY4y0jQH75

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FND Action Retweeted · kez malloch @k_malloch

July 14, 2021 at 4:59am
2 books for children & parents/ guardian etc to read thru are now available on amazon.the fairy rose series is illustrated by my 14 yr old daughter holly. It says for children but is also good for adults to read.amazing! A4 size book. @jonstoneneuro @FndPortal @FNDAus @FNDAction https://t.co/jcXofUXWjE

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Stay in Touch

Coming soon!

c/o Medway Voluntary Action
5a New Road Avenue, Chatham
Kent ME4 6BB
Email: contact@fndaction.org.uk