Our website is currently being updated page by page,
so please bear with us through this transition.

Who we are

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

What we do

We provide support to those diagnosed and their caregivers by hosting online support groups, an informative website and actively advocating for the cause.

Why we do it

Functional neurological symptoms are commonly seen in Neurology and epilepsy clinics, yet there is still little-known about the condition within the health sector or understanding is outdated. This leads to people struggling to access any treatment. No-one should ever feel isolated and uncared for.

Our Mission

We aim to develop our website as a key resource for those diagnosed, caregivers and the public. Our online support groups provide a safe place to be among people who understand. We are committed to continue our strive to advocate for the cause, so that health and support services are available for all.

WHAT IS FND?

Functional Neurological Disorder is a diagnosis given when there is a problem with how the brain/nervous system is 'functioning'. Whilst the basic wiring is intact, there is a problem with how the signals/messages are being sent and received to allow the body to function in the normal way.

YOU MATTER

Getting diagnosed can be both a blessing and seemingly a curse. You may have had years of tests, different doctors and medications, so it can be a relief to finally know what is wrong. However, you may feel a bit lost and frustrated, and need to come to terms with your condition.

YOU'RE NOT ALONE

With a diagnosis that is still little-known, you can feel like you have nobody to talk to about it. You are not alone. Online support groups provide a safe place, where you can be among people who care and that are going through similar experiences.

FUNDRAISE

Fundraising is not only fun, but it's a great way to get involved with supporting a cause that it close to you. Activities could range anywhere from arranging a coffee morning to climbing Ben Nevis. All donations received go towards helping us to support people diagnosed.

Participants needed | Living With Complex, Poorly-Understood Medical Conditions

June 7, 2021

News Join us Donate Contact EXPERIENCES OF STIGMA AND SHAME “My name is Katharine and I am a PhD researcher at the Institute for Medical Humanities, Durham University, and currently recruiting participants to interview as part of

Research participants needed | Functional Neurological Disorder and Comorbidities

May 19, 2021

News Join us Donate Contact [CLOSED] “I am a consultant neurologist at the St George’s FND service, London UK. We are interested in physical conditions people develop after FND diagnosis. These require recognition and people can benefit from treatment. Quite

Functional Neurological Disorder/FND Action

11 Jun 2021

Simon’s story: "My caring role is one that’s increased over time. I haven’t been plunged into hot water; I’ve been placed in cold water and...

carersupportwiltshire.co.uk

Simon’s story | Carer Support Wiltshire

Functional Neurological Disorder/FND Action

11 Jun 2021

No-one sits alone within the FND community 💜 #HappyPrideMonth

Stay in Touch

Coming soon!

c/o Medway Voluntary Action
5a New Road Avenue, Chatham
Kent ME4 6BB
Email: contact@fndaction.org.uk