Carer’s information
A carer is someone who provides unpaid support to a family member or friend who, due to illness, disability, or emotional health challenges, cannot manage daily life independently.
A young carer is under 18 and takes on responsibilities such as household tasks, emotional support, or personal care for a family member with health issues.
Challenges Faced by Carers
Caring for someone with Functional Neurological Disorder (FND) can be rewarding but also presents numerous challenges:
Physical and Emotional Strain: Balancing caregiving with work and family life can lead to exhaustion and stress.
Mental Health Impact: Witnessing a loved one’s distress may contribute to anxiety or depression.
Financial Difficulties: Many carers reduce work hours or leave employment, leading to financial strain.
Social Isolation: The demands of caregiving can limit social interactions and support.
Educational Impact on Young Carers: Young carers often face challenges in education and social development.
A Poem for Carers
Written by Robson, at the age of 8
💜 For his big sister 💜
I hold your hand through every seizure and wipe your teary eyes
I know how much you struggle but I love you all the same
No one seems to understand but other warriors do
Do not be ashamed as you’re strong and mighty all the same
🤝 Tips for Supporting a Loved One with FND
Whether you’re caring for a partner, friend, parent, or child, your support makes a real difference. Here are a few ways to care while staying connected and resilient:
- ➤ Learn about FND
Understanding what your loved one is going through can make a big difference. Take time to learn about FND – it can help you feel more confident, informed, and better equipped to offer support. - ➤ Keep communication gentle and open
Let them know you’re there, even if they don’t feel like talking. Just sitting beside them or checking in with kindness can help. A calm, safe space where they feel heard – without pressure to explain – goes a long way. - ➤ Support their confidence and sense of control
Encourage your loved one to do what they can, when they can. Small steps build self-belief. Let them lead where possible, and remind them you’re there to support – not take over. - ➤ Look after yourself too
Caring for someone can be emotionally and physically demanding. Your wellbeing matters too. Rest when you can, talk to someone you trust, and remember – it’s okay to ask for help.
🧒 Supporting Young Carers
- ➤ Talk openly and listen well
Give them space to talk about how they’re feeling without pressure. Reassure them it’s okay to feel a mix of things – they’re not alone. - ➤ Celebrate their efforts
Being a young carer is a big responsibility. Recognise their compassion, patience, and strength – even small acts matter. - ➤ Support their right to be a child
Encourage downtime, fun, and play. They might take on adult responsibilities, but they still need time to just be kids. - ➤ Work with schools
Let teachers or support staff know about their caring role. It can lead to more understanding and the right kind of flexibility. - ➤ Connect them with support
Local young carers groups or national charities can help them feel seen, heard, and supported by others who understand.
💜 Are You a Carer Looking for More Support?
Join our Facebook Support Group for carers and family members of those diagnosed with FND – a space to connect, share, and find practical advice from people who truly understand.
Please also see the carer and young carer resource links for further support. You’re not alone – and help is out there for you, too.
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Email: contact@fndaction.org.uk