Carer’s information

A carer is someone who provides unpaid support to a family member or friend who, due to illness, disability, or emotional health challenges, cannot manage daily life independently. 

A young carer is under 18 and takes on responsibilities such as household tasks, emotional support, or personal care for a family member with health issues.

Challenges Faced by Carers

Caring for someone with Functional Neurological Disorder (FND) can be rewarding but also presents numerous challenges:

  • Physical and Emotional Strain: Balancing caregiving with work and family life can lead to exhaustion and stress.

  • Mental Health Impact: Witnessing a loved one’s distress may contribute to anxiety or depression.

  • Financial Difficulties: Many carers reduce work hours or leave employment, leading to financial strain. 

  • Social Isolation: The demands of caregiving can limit social interactions and support.

  • Educational Impact on Young Carers: Young carers often face challenges in education and social development.

A Poem for Carers

Written by Robson, at the age of 8
💜 For his big sister 💜

I hold your hand through every seizure and wipe your teary eyes

I know how much you struggle but I love you all the same

No one seems to understand but other warriors do

Do not be ashamed as you’re strong and mighty all the same

🤝 Tips for Supporting a Loved One with FND

Whether you’re caring for a partner, friend, parent, or child, your support makes a real difference. Here are a few ways to care while staying connected and resilient:

  • Learn about FND
    Understanding what your loved one is going through can make a big difference. Take time to learn about FND – it can help you feel more confident, informed, and better equipped to offer support.
  • Keep communication gentle and open
    Let them know you’re there, even if they don’t feel like talking. Just sitting beside them or checking in with kindness can help. A calm, safe space where they feel heard – without pressure to explain – goes a long way.
  • Support their confidence and sense of control
    Encourage your loved one to do what they can, when they can. Small steps build self-belief. Let them lead where possible, and remind them you’re there to support – not take over.
  • Look after yourself too
    Caring for someone can be emotionally and physically demanding. Your wellbeing matters too. Rest when you can, talk to someone you trust, and remember – it’s okay to ask for help.
  •  

🧒 Supporting Young Carers

  • Talk openly and listen well
    Give them space to talk about how they’re feeling without pressure. Reassure them it’s okay to feel a mix of things – they’re not alone.
  • Celebrate their efforts
    Being a young carer is a big responsibility. Recognise their compassion, patience, and strength – even small acts matter.
  • Support their right to be a child
    Encourage downtime, fun, and play. They might take on adult responsibilities, but they still need time to just be kids.
  • Work with schools
    Let teachers or support staff know about their caring role. It can lead to more understanding and the right kind of flexibility.
  • Connect them with support
    Local young carers groups or national charities can help them feel seen, heard, and supported by others who understand.
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💜 Are You a Carer Looking for More Support?

Join our Facebook Support Group for carers and family members of those diagnosed with FND – a space to connect, share, and find practical advice from people who truly understand.

Please also see the carer and young carer resource links for further support. You’re not alone – and help is out there for you, too.

Carers UK provide advice, peer support, and advocacy for unpaid carers, including information on benefits, assessments, and rights.
Carers Trust provide access to local support services, financial assistance, and legal guidance tailored to carers' needs.
The NHS provides information on carer's assessments, respite care, young carer's support and financial support available through NHS services.
The Children's Society provide specialist support and resources for young carers, including balancing caring responsbilities with education.
Action for Children provide support for young carers and their families, with practical and emotional assistance across the UK.
Young Minds offer mental health support and pratical advice for young carers, to help them cope with the challenges they may face.

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