Participants needed | Exploring the experiences of the diagnosis and treatment processes for Functional Neurological Disorder (FND)

This survey aims to explore the experiences of patients, caregivers, and healthcare workers involved in the clinical management of functional neurological disorder (FND). The hope is to gather these experiences so we can learn how to improve healthcare services for FND patients.

If you are a patient, caregiver, or healthcare worker based in the UK and has experience of the diagnostic and treatment processes for functional neurological disorder (FND), please consider taking 15-20 minutes to complete the survey. The survey is completely confidential.

Study title:

An online survey exploring the experiences of the diagnosis and treatment processes for Functional Neurological Disorder (FND)

What’s it about?

Diagnosing FND is challenging both for the patient and healthcare worker as there are limited diagnostic tools. This can be particularly frustrating for the patient as they are undergoing tests which may not lead to a diagnosis. The experiences of those involved (such as patients, their caregivers, and healthcare workers) in the diagnosis and treatment of FND have not been widely discussed or officially documented. 

Am I eligible to take part?

You are eligible if you meet one the following criteria:

• Adults (aged 18+) who have received a diagnosis of FND, undergoing diagnosis of FND, suspect they have FND, or have been unable to access services to obtain a FND diagnosis.
• Adults (aged 18+) who provide support for a person who has received a diagnosis of FND. 
• Healthcare workers who have been involved in the diagnosis and treatment of those with FND. 

What will I have to do?

To access the survey please click on the link below.

Note: Some questions in the survey include the term ‘conversion disorder’, as the terminology is still used in certain settings for recognition purposes.

Contact information:

Danielle Varley, PhD student, Department of Health Sciences

Email: danielle.varley@york.ac.uk

Text/call on 07961 078 143.