Community Groups
FND Action provides a range of community groups for people affected by Functional Neurological Disorder (FND). They are places to meet others who understand some of the realities of living with FND, whether that is through an online community, a local meetup or simply having somewhere to stay connected. Our groups also welcome carers, family members and others supporting someone with the condition.
Everyone connects differently. Some people enjoy meeting face-to-face, while others may find WhatsApp, online communities or virtual meetings easier and more accessible. We want people to have different ways to take part, rather than feeling there is only one way to belong to a group.
Alongside our UK-wide online communities, we are continuing to build regional groups where people can connect closer to home. Depending on the area, this may include informal in-person meetups, WhatsApp chats and online meetings through Microsoft Teams.
Whether you are newly diagnosed, have been living with FND for many years, or are supporting someone with the condition, our communities are there to help people connect, share experiences, build friendships and feel part of something wider. You can find details of our UK-wide online communities and regional groups below.
Connection & Shared Experiences
Meeting others who understand can make a real difference. Our groups give people space to share experiences, hear different perspectives and feel less alone in some of the challenges that can come with FND.
Practical Information
Members can share useful ideas, local knowledge and experiences of everyday life with FND. Sometimes another person in the community may already have come across something you are trying to navigate.
Friendship & Encouragement
FND may be what first brings people together, but it does not have to be what every conversation is about. Our groups can also be places to make friends, have a laugh, celebrate achievements and simply enjoy some company.
Ongoing Support & Activities
Our communities are about more than one-off conversations. Depending on the group, there may be regular meetups, online catch-ups, social activities and other opportunities to stay involved and connected.
UK-wide online communities
Our online communities are open to people across the UK and give members another way to connect from home. They are places to ask questions, share experiences, join discussions or simply read along and take part when you feel comfortable.
We currently have three private Facebook groups, including separate groups for men affected by FND and for carers, as well as our community on HealthUnlocked.
FND Action Facebook Community
Our main private Facebook group brings together people affected by FND from across the UK to talk, ask questions and share experiences.
Join Facebook groupMen's FND Community
A private Facebook group for men affected by FND to connect with others, share experiences and talk in a dedicated space.
Join men's groupFND Carers Community
A private Facebook group for carers, family members and others supporting someone who is living with FND.
Join carers groupHealthUnlocked Community
Our HealthUnlocked community is being relaunched, providing another way to ask questions, share experiences and connect with others affected by FND.
Visit HealthUnlockedRegional Community Groups
Our regional community groups help people connect with others closer to home. We know that travelling or attending face-to-face activities is not always possible, so groups can offer different ways to stay involved.
Depending on the region, this may include informal in-person meetups, a regional WhatsApp chat and online meetings through Microsoft Teams. You do not have to attend everything to be part of your local community.
Each group is at a different stage of development, so what is available will vary from one area to another. You can find the latest details and contact information below.
Not every option is available in every area yet. If you are interested in a group, please still get in touch even if the particular activity you are looking for is shown as coming soon.
Essex
View group ↓Hampshire
View group ↓Kent
View group ↓Lancashire & Greater Manchester
View group ↓London
View group ↓Surrey
View group ↓Essex Community Group
The Essex Community Group is open to people living with FND, as well as carers, family members and loved ones who would like to connect with others across the area.
Want to join or find out more?
Email
jordan@fndaction.org.uk
or
julie@fndaction.org.uk
Hampshire Community Group
The Hampshire Community Group is open to people living with FND, as well as carers, family members and loved ones who would like to connect with others across the area.
Want to join or find out more?
Email Vikki:
vikki@fndaction.org.uk
Kent Community Group
The Kent Community Group is open to people living with FND, as well as carers, family members and loved ones who would like to connect with others across the area.
Want to join or find out more?
Email Jason:
jason@fndaction.org.uk
Lancashire & Greater Manchester Community Group
The Lancashire & Greater Manchester Community Group is open to people living with FND, as well as carers, family members and loved ones who would like to connect with others across the area.
Want to join or find out more?
Email Maz:
maz@fndaction.org.uk
London Community Group
The London Community Group is open to people living with FND, as well as carers, family members and loved ones who would like to connect with others across the area.
Want to join or find out more?
Email Gemma:
gemma@fndaction.org.uk
Surrey Community Group
The Surrey Community Group is open to people living with FND, as well as carers, family members and loved ones who would like to connect with others across the area.
Want to join or find out more?
Email Chi Chi:
chichi@fndaction.org.uk
Can't see your area?
We are continuing to expand our regional community groups across the UK. To establish groups in new areas, we need local volunteers who can help us get them up and running. If you would be interested in helping to set up and support an FND Action community group in your area, please get in touch. We will provide guidance and support to help you get started.
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Email: contact@fndaction.org.uk