Demi’s Story | FND Awareness Day UK 2026

For the past two years, I have been fighting a battle that most people cannot see.

I suffers from FND (Functional Neurological Disorder). In that time, I have endured seizures, extreme fatigue, episodes where I am unable to speak, body paralysis, chronic headaches, and constant body aches. I have been trialled on seizure medications, but nothing has worked. There is no simple fix, no quick solution — just daily strength and resilience.

FND has affected me medically, mentally, emotionally, and socially. It has changed every part of my life. Simple daily tasks can feel impossible. The things I once loved and enjoyed have been taken from me. Plans get cancelled. Independence is impacted.

There are days where I feel like I will be like this forever, mentally unprepared for what could possibly happen next, and often I question WHY ME!

I am still experiencing new symptoms, triggers and learning every single day about FND.

What I hate is when people look at me or say “it’s in your head” this might be a silent illness but I sure as hell do suffer with every aspect of FND.

No-one should be silenced and no-one should have to suffer alone.

~ By Demi, Age 31