FND Awareness Day UK | 25th March 2022 | Amanda’s Story

I got up one morning in Oct 2020 and I was jerking and shaking on my left leg and right arm. I called the doctors and they said it was probably a flare up of my rheumatoid. As the days went on I got worse. My speech started to go, I had bad memory, no concentration, severe fatigue, seizures, slow movement, weak muscles, tremors, headaches and pain in my joints, which maybe the 2 causing joint pain.

I have had an MRI, EEG, MRI on my spine, and I was finally diagnosed with FND Feb 2022.

My whole life has completely changed. I’ve had to give up work, stop drinking and I can’t really go anywhere as I get so tired. I am currently waiting on treatment so my daily life is a struggle.

This is an extremely scary disorder. The medical community should be more aware of this, and treatment should be offered straight away as this is a disabling disorder and has made me a prisoner in my own home. There should be a lot more funding put into this as I had never heard of this before I was diagnosed.

This disorder really needs more attention as you can recover if you get treatment.

Written by Amanda, Glasgow