The 25th March marks FND Awareness Day in the UK, a day for our community to come together to raise awareness of Functional Neurological Disorder (FND) and encourage others to learn more and get involved.

Functional Neurological Disorder (FND) is a brain network disorder that can affect anyone, at any age. For many people the neurological symptoms are severe and disabling, yet access to specialist care remains extremely limited in most parts of the UK.

Whilst neurologists see FND frequently in their clinics, many people find that receiving the diagnosis is only the beginning of a long and difficult journey. Awareness and understanding of FND are still low, leaving many individuals and families struggling to find the care and support they need.

Current estimates suggest that between 50,000 and 100,000 people in the UK may be affected by FND, although true prevalence remains unclear due to a lack of consistent reporting. Whilst specialist services and care pathways are slowly developing, access to appropriate treatment remains a postcode lottery.

FND Action advocates for accessible, collaborative specialist care for all. People living with FND deserve the opportunity to achieve and maintain the best possible quality of life.

FND Awareness Day UK gives us the chance to come together as a community and be the #Voices4FND to influence change.

Below you will find several ways you can take part and help raise awareness this year.

#MapFND

This FND Awareness Day we are building a map of voices across the whole of the UK.

By adding your town and county, you are helping to show where awareness and support for FND is being represented. Whether you live with FND, support someone who does, work in healthcare, or simply want to help raise awareness, every entry helps us show the growing reach of the FND community.

As more people take part, the map will grow to highlight voices across the country helping to improve understanding of FND and the need for better support, awareness, and access to care.

Add your town and become part of #MapFND, helping to show that awareness of FND is present across the UK and that no one is alone.

Entries will be reviewed and added to the map regularly.

Entries now closed

Online Event – 25th March 2026

FND: A New Era – 11:00am – 12:30pm

In this talk, you’ll explore how understanding of Functional Neurological Disorder (FND) has evolved and what this means for people living with the condition today. The session will highlight the importance of education for patients, families and professionals, the role of charities and networks, and the different therapies that can support people with FND. It will also reflect on the challenges that remain and the hopeful signs for the future.

Followed by Q & A session.

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Jeanette Clarke’s Art Workshop – 01:30pm – 3:00pm

This session is a mix of Zentangle and neurographic art with your host Jeanette. What you will need: yourself, note book or paper, black thick felt tips eg. sharpie or marker pen, black fine liner, colour pencils or felt tips. Zentangle is known for its self-soothing effects the repetitive drawing can be calming and self-soothing. Neurographic art has so many benefits, It can help ease the stress of countless different issues, including anger, addiction, anxiety, chronic pain, grief, and depression.

Through the use of mindfulness and awareness, you can channel that pain into something creative.

Share your story

FND affects not only those diagnosed but also caregivers, families, and friends. Every experience is unique, yet many people face similar challenges – misunderstanding, stigma, and the realities of navigating daily life.

By sharing your story, whether you live with FND or support someone who does, you can help raise awareness, build understanding, and strengthen the FND community. Your story can educate others, inspire hope, and remind people that they are not alone.

Whether it’s a personal journey (at any age), a moment from everyday life, or the highs and lows of caregiving, every voice matters.

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Your voice on FND

What is one thing you wish people understood about Functional Neurological Disorder?

For FND Awareness Day, we’re inviting people to share a short video answering this question. Whether you live with FND, support someone who does, or work in healthcare, your voice can help raise awareness and understanding. Your video doesn’t need to be perfect – just honest.

You might like to share something you wish people understood about FND, a misconception you would like to challenge, or what living with FND is really like.

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🧸FiNDlay’s Awareness Activity

FiNDlay bear has a special awareness activity for children, families, and anyone who enjoys being creative.

Download the activity sheet and use it to draw a picture, write a poem, or share a message about FND.

When you’re finished, take a photo of your creation and send it to us to share on our social media platforms. 🐾

You can:

Email it to contact@fndaction.org.uk
Send it via Facebook or Instagram message
Share it on social media and tag us

(You may find these easier to download and print from a desktop device)

Download & share

Help raise awareness of FND by downloading and sharing the graphics below on social media, websites, newsletters, or community pages.

Every post helps more people learn about FND and the challenges many patients face in getting diagnosis, understanding, and appropriate care.

Planning an awareness activity?

If you’re organising an awareness event, fundraiser, talk, or local activity for FND Awareness Day UK, we would love to hear about it.

You can let us know by getting in touch with us at contact@fndaction.org.uk, or simply tag us on social media so we can help share your activity with the community.

Don’t forget to use the hashtags:

#Voices4FND

#FNDAwarenessDayUK

Together we can help more people understand Functional Neurological Disorder.

From all of us at FND Action, thank you for getting involved and your continued support.

5a New Road Avenue
Chatham, Kent
ME4 6BB
Email: contact@fndaction.org.uk