Katie’s Story | FND Awareness Day UK 2026

March 25, 2026

A personal story of caring for a daughter living with Functional Neurological Disorder (FND).
~~~

My daughter has FND, but she’s not the only one affected by it.

Her world has been upended which has sent ripples reaching further than we knew. At just 20 my whirly girly went from bright and bold; at the start of a new career, to desperately lost and beholden to this unknown disorder that robbed us all of the person she was becoming.

The tics took over, the limb weakness disabled her and the seizures were horrific. The very beginning was horrendous, not really having any answers, struggling to get the right referrals, it was a long slog to get the help she needed.

From the depths of despair she has carved a new path for herself, she has learned to manage the unpredictable nature of FND and hopefully we are on our way to getting a diagnosis and medication for the tics. After many doctors, many different treatment options and constantly trying to explain she is now training to be a counsellor. Hopefully she will go on to help others and be able to use her own experiences to their benefit .

I am so proud of her.

~ By Katie, Age 48

5a New Road Avenue
Chatham, Kent
ME4 6BB
Email: contact@fndaction.org.uk