FND Action 10th Anniversary

Write to the Prime Minister about FND

As part of our 10th anniversary, we're inviting people affected by Functional Neurological Disorder to write to the Prime Minister and share their own experience of FND.

Your letter is an opportunity to explain what living with FND really means, what care is available where you live and what you would like to see improve.

What could I write about?

Your letter doesn't need to be long and there is no right or wrong way to tell your story. You could include:

How FND affects you or someone you care for.
Your experience of receiving an FND diagnosis.
The treatment or rehabilitation you have been able to access.
How long you have waited for appropriate care.
Whether FND services are available where you live.
Whether you have had to travel to access treatment or specialist care.
What has helped you.
What is currently missing from FND care in your area.
What you would most like to see improve for people living with FND.

Need some help getting started?

You can write your letter entirely in your own words, or use the suggested wording below to help you get started. You can copy and paste it into your own document if you are typing your letter.

Suggested opening

As part of FND Action's 10th anniversary, I am writing to you to share my experience of Functional Neurological Disorder (FND) and what I believe needs to improve for people living with the condition.

FND is a neurological condition that can cause a wide range of disabling symptoms, including problems with movement, seizures, speech, sensation and other neurological functions.

Then tell your story. You could use some of the ideas above to help you decide what you would like to include.

Suggested closing

Thank you for taking the time to read about my experience. I hope my letter helps demonstrate why people living with FND need appropriate neurological care and support wherever they live. For further information about FND please visit fndaction.org.uk

Ready to write?

You can type your letter on your computer and print it, or simply write it by hand. Your letter doesn't need to follow a particular format. What matters is that it reflects your own experience and what you would like the Prime Minister to understand about FND.

Where do I send my letter?

The Prime Minister
10 Downing Street
London
SW1A 2AA

Remember to include your name and return address on your letter.

Why are we doing this?

There has been important progress in recognising what appropriate FND care should look like, with clinical guidance and pathways for FND now in place.

But a pathway on paper only makes a difference when people can access the services it describes.

FND Action wants to see appropriate FND services commissioned, adequately funded and accessible across the country, with people living with FND able to access appropriate diagnosis, treatment and rehabilitation wherever they live.

Alongside our ongoing work with the NHS, FND specialists, commissioners and others involved in developing and improving FND care, the experiences of people living with FND are an important part of demonstrating why change is needed.

By sharing individual experiences from different parts of the country, our community can help show where progress has been made, where gaps in care still remain and why access to appropriate FND services matters.

Be part of our 10th anniversary

Letter to Number 10 is one of our 10 ways to celebrate 10 years of FND Action.

#FNDAct10n • 10–19 October 2026

5a New Road Avenue
Chatham, Kent
ME4 6BB
Email: contact@fndaction.org.uk