Due to current lack of awareness, being diagnosed with a Functional Neurological Disorder can not only lead you to search for answers as to what it is and how you can get better, but it can also leave you feeling very isolated. YOU ARE NOT ALONE and online support groups provide a platform to talk to others who are in the same/similar place as you.
Peer support groups have many advantages such as they help eliminate isolation, provide a safe place to emotionally support each other and share experiences without prejudice, and provide a stepping stone to aid in recovery and long term health management. They also can connect you with others in your area, to befriend or find out information of accessible local support and medical care.
FND Action provide private peer support groups on Facebook for people diagnosed, their carers, and family and friends. and have recently launched an online community on HealthUnlocked. Links can be found below:
FND Action – Functional Neurological Disorder UK
This Facebook group is for people in the UK who have been diagnosed with a Functional Neurological Disorder (including NEAD), and their carers, family and friends.
FND Action – Non Epileptic Attack Disorder UK
This Facebook group is for people in the UK who have been diagnosed specifically with Non Epileptic Attack Disorder or dissociative seizures, and their carers, family and friends.
FND Action – Carers Support Group UK – FND & NEAD
This Facebook group is for carers and family members in the UK who support and/or care for someone diagnosed with a Functional Neurological Disorder and/or Non Epileptic Attack Disorder.
FND Action – Man Cave Support Group UK – FND & NEAD
This Facebook group is an additional space for men diagnosed with a Functional Neurological Disorder and/or Non Epileptic Attack Disorder, and for men who care for someone diagnosed.
We also have a Facebook open page, which can be viewed publicly, where we regularly post relevant news and information. This can be found clicking the link Functional Neurological Disorder/FND Action.
In addition …
Listed below are links to Facebook groups that we think you may find useful. If you have a group that you would like adding to the list then please let us know.
Bristol FND is a local group which has been set up to provide an online support platform for those in the Bristol area, and arrange meet ups for those diagnosed and their carers.
Disabled View UK is a non political group which has been set up for disabled people, carers and advocates. Its aim is to provide support to those being hit the hardest by the current welfare reform.
Epilepsy Action Scunthorpe is a local group for those with Epilepsy and seizures, including NEAD.
Functional Movement Disorder is a UK chat group for movement disorder sufferers.
NEAD Notts is a local support group for those diagnosed with Non Epileptic Attack Disorder in the East Midlands area, and meet up regularly.
Vitamin B12 Wake Up is a group which provides support & information for those diagnosed with a B12 deficiency.
Young FND Fighters is a group which has been set up by young FND sufferers, to provide a support platform and be able to discuss relevant topics that arise from living with FND at a younger age.