I had briefly heard about FND through social media, but I didn’t look much into it until a neurologist said I had it back in December last year.
It’s turned my whole world upside down, I’ve had to have help with basic things that I used to be able to do. I felt some what embarrassing asking for help to go to the toilet at 19 because I knew I was used to doing that by myself.
It’s really scary, and I never know what my day is going to be like and how capable I’m going to be to do things. I use to get really frustrated with myself, because I felt like my feet were stuck in cement, but once someone explained that you have to be kind to yourself and just give yourself a break, the frustration melted away.
I’m still new to all of this, and don’t know a lot about it, nor know a lot of people who suffer from it, I know there’s people out there that can help and who suffer as well but I always feel so alone. I suffer from hand tremors, hand weakness, locked hands and arms, weakness/paralysis in legs, leg tremors, numbness in some fingers, numbness in feet and legs.
I hope my experience makes someone feel less alone, I’m also hoping to educate myself more about FND and what others are going through.
Thank you for listening.
Written by Yazmin, Essex