FND Awareness Day UK | 25th March 2022 | Julian’s Story

Brief History: I was diagnosed with FMD about ten years ago by Professor Edwards, and it only ever affected me when I was tired towards the end of the day.

Over the years my FMD has got worse and only affects me when I am fatigued. About three years ago I had to have a suprapubic catheter due to urine retention when I was tired. My fatigue got worse over the years and could no longer walk any distance, to the point I could not manage to walk around the house, so now a permanent wheelchair user. Also my nerve pain is getting worse, but again only by the end of the day or I have pushed my body to much that day. My fatigue is getting worse leaving me at present very tired by lunchtime, if I do to much the fatigue will take a couple of days to reduce.

There is no psychological evidence to prove that a past event was my initial trigger for FMD.

Written by Julian, Worthing