FND Awareness Day UK | 25th March 2023 | Saffron’s Story

So my FND story started when I was 16.

I had multiple seizures a day, and I always needed an ambulance out because I would hit my head. Then one day I had stroke like symptoms. As I lost all my ability to move and talk the ambulance crew thought it was to do with my VP shunt because I have hydrocephalus, but nothing was found.

Along time after that I have locking limbs and my seizures got worse. I was fighting with one neurologist person to believe me and finally I found one that explained to me it was FND. 

I finally started my journey to recovery, and I am now 6 months seizure free and I feel great. Now I’m in my second year at college doing level 2 diploma in health and social care, and I’m also engaged to my beautiful fiancé.

Written by Saffron, Birmingham


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